Wednesday -a busy day.  Slept moderately well, work with no cough or trouble breathing - the effect of the dexamethasone.  Could be working on bulk cancer, or maybe some asthma.  Felt good.  Hospice nurse came - needed to collect sputum for culture  -someone came to pick that up.  Visit from Rebecca (Bens wife), which was much appreciated.  Chuck Dayton visited for a chat at around 3.00pm.  Jeff Palmer brought around my in-progress remodelled leg - almost right but not quite, so will see him again tomorrow am.   Lot of back pain in afternoon.  Ray Hohl visited late afternoon, and we are going to have a look see CT scan either Thursday or Friday.  Hemaglobin likely low so will check that at the same time.  Maybe transfuse.
Still cant find the perfect right food to eat.
Allan and Mary-Beth Ross visited in the evening - always nice to see them also.

Had a visit from Kim Baker and her husband Rami and daughters Olivia and Lilla yesterday afternoon.  They brought homemade lasagna which was delicious.  Joseph Zabner visited during the evening and we had a good discussion.  Slept reasonably well last night naturally.  Started some dexamethasone yesterday afternoon to try and help alleviate the cough and shortness of breath that seems to intermittently occur and be responsive to Ventolin.  This has worked very well.  Working with Tony Fanchi and Amanda Smith on a lung cancer paper (as mentioned yesterday) which should be finished by the end of the week.  Another paper accepted by the New England Journal of Medicine.  This is one of our clinical studies.  Beautiful sunny day here.  Intending to get out and about shortly to see a bit of sunshine.  Geoff

Hi Everyone .. Chris here writing for Geoff.  Happy weekend as we were joined by our daughter Rebecca, her husband Cameron and their son Declan.  Geoff gave a talk at the Pulmonary Residents Graduate Dinner on Saturday night and it was great to see colleagues and old friends all of whom received Geoff warmly.  It was also the occasion the Iowa Foundation chose to introduce and launch a fundraising effort to seek funds for a Chair to be named for Geoff - a great honor.  Sunday we were visited by old friends Ron and Sonia Ettinger and enjoyed great conversation.  Eating still proves to be a challenge and we are exploring many take-out options around town.  Sleeping very difficult also.  We continue to enjoy, and are grateful for, the many messages of caring we receive from dear friends, and colleagues.  Geoff continues to work and is currently writing a paper with Tony Fanchi.  Do keep in touch.

Today, not too bad as far as how I feel.  Nothing out of the ordinary.  Still trying to find food I can eat.

Welcome

Welcome to our blog.  This is to share information about my osteogenic sarcoma, now untreatable - and its interaction with me, family and friends.