Thursday, July 1, 2010

today had visit from fran and brad taylor from madison, wisconsin.  they are great longstanding friends from sam's time in uni of madison.  they came around 11.00 am, and met our prosthetic guy, jeff palmer, who came to our house to fit the new leg - new leg works well - he came at around 10.30 am. - and did a really good job.
at around noon after taylors and palmer had left we went into uni of iowa hospitals for blood check - hemoglobin was 9.0 so had a unit of blood transfused.  ct scan showed no right lung now (all replaced by tumor), compression of the left lung from this massive tumor load from the right, tumor growing through chest wall at the back on the right - all this much unchanged from a month ago - except right lung completely replaced.  closure of the right lung would explain why less thick mucus is now coughed up as i guess this came from the right lung remnant. so that is good - my sats remain the same and expired volume the same at around 1000ml.  
the major change on ct is a growing mass just behind the left main bronchus at its origin - this was there 4 weeks ago, but has grown to encroach on the lumen of the left main, narrowing it down.  this explains the cough to and extent, as well as the asthma like symptoms, as well as the improvement on dexamethasone noticed this week (reduces tumor swelling). So this needs to be dealt with since it is at a critical part of the airway. either to stop to it getting worse, or to improve it.  2 choices  - place a stent, which seems really difficult to me, or targetted radiotherapy.  ray hohl organised visits with john buatti, also today.  he thought this was a good idea and do-able - so had planning ct done, and will have 5 treatments starting tomorrow(friday). very good service.  i asked karl thomas and kim baker what they thought about a stent, and they agreed with me - so good discussion.  caught up with amy nibaur - our cancer clinic nurse (in our lung cancer clinic).  kim baker spent a lot of time with me, which was good.
visited also while having blood by david stolz who provided information about the monthly cystic fibrosis muco-ciliary clearance meeting, per phone today, which he presented our work at.  that was very good also.
joe zabner also visited.
left the hospital at around 6.00 pm - my leg worked well all day.  chris watched over me, and trundled me around in our wheel chair.
came home to visit with herb berger who came at 6.30 pm for a chat (pre-arranged) - this was also very pleasant.
liquid oxygen was delivered to day so chris got our neighbour margie to let them into the house and do the delivery.  got a quote for resurfacing our decks  - so that will be done in the next few days, thank goodness.
so a big, but very useful day.  now i cant sleep tonight! drives me nuts.
had chinese for dinner, but quite late around 8.30 (after herb had left).

so we will see regarding outcomes, but i am very optimistic.

1 comment:

  1. Your blog is excellent; keeps us up to speed. Glad you are optimistic on treatments. Thinking of you daily. Mike McNitt-Gray

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